{"id":2610,"date":"2024-02-15T10:01:00","date_gmt":"2024-02-15T10:01:00","guid":{"rendered":"https:\/\/goodheart.sva.la-studioweb.com\/?page_id=2610"},"modified":"2026-04-21T17:33:03","modified_gmt":"2026-04-21T17:33:03","slug":"01-goodheart-charity","status":"publish","type":"page","link":"https:\/\/empowersicklecellcommunity.org\/","title":{"rendered":"Empower Sickle Cell"},"content":{"rendered":"\t\t
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EMPOWERSICKLE CELL COMMUNITY<\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Breaking Myths, Building Hope<\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Empower sickle Cell Community<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Welcome to the official website of Empower Sickle Cell Community. Our mission is to raise awareness, support and give hope to all people affected by sickle cell disease.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Our Story<\/strong> : The idea of creating Empower Sickle Cell Community came from Maguette Ndiaye and Dieynaba Ndiaye, two sisters living with sickle cell disease (SS type). Growing up in Africa, they faced enormous challenges, such as limited medical resources and misconceptions surrounding the disease. These experiences had a profound impact on them.<\/p>

Today, living in Europe and the United States, they are using their personal journey to support children and families facing similar struggles. Their vision is to build a supportive community based on sharing and mutual aid, transforming challenges into hope.\"\"<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\tMaguette Ndiaye and Dieynana NdiayE<\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Our Mission<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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At Empower Sickle Cell Community, our mission is to transform the challenges of sickle cell disease into opportunities for resilience and hope. We are working to:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Raise awareness<\/h3>

Educate the general public to break the myths and stereotypes surrounding sickle cell disease.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Provide support<\/h3>

Assist patients and their families with practical resources, advice, and emotional support.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Unite <\/h3>

Build a supportive community that shares experiences and promotes a better understanding of the disease.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Advocate<\/h3>

Champion equitable access to medical care and appropriate treatments, especially in the most affected regions.<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Our Values<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Hope<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Inspire hope for a better quality of life for people living with sickle cell disease through medical advancements, community support, and increased awareness.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Promote an environment where individuals living with sickle cell disease feel valued, respected, and fully integrated into society, free from stigma and discrimination.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Solidarity<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Embracing innovation allows us to find creative and effective solutions to evolving issues. We continually explore new approaches to maximize the reach and effectiveness of our programs.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Upcoming Events<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Awareness Day<\/a><\/span><\/div>
Dakar<\/span><\/div><\/div>
21<\/span> Jun<\/span>,<\/span> 2025<\/span><\/span><\/span><\/div><\/div>

Awareness day about sickle cell<\/a><\/h3>
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JOIN EVENT<\/span><\/a><\/div><\/div><\/div><\/div>\n <\/div>\n<\/div>
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Awareness Day<\/a><\/span><\/div>
Dakar<\/span><\/div><\/div>
30<\/span> May<\/span>,<\/span> 2025<\/span><\/span><\/span><\/div><\/div>

Awareness Day, Blood Donation, and Screening in Dakar<\/a><\/h3>
Empower Sickle Cell Community is organizing a special day dedicated to the fight against sickle…<\/div>
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Empower Sickle Cell <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\tAt Empower Sickle Cell Community, we believe in the power of dialogue to inform, support, and inspire. That\u2019s why we regularly host live sessions on TikTok.\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\tSharing our experiences: As individuals living with sickle cell disease, we talk about our daily lives, the challenges we face, and the solutions that help us move forward.\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\tGiving a voice to parents: Parents play a key role in managing the disease. We provide them with a space to share their stories, ask questions, and find support.\nCollaborating with healthcare professionals: During our live sessions, doctors, nurses, and other experts join to offer practical advice and address the concerns of our community. \t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Successful Stories<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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February 2, 2024<\/span><\/div><\/div>

Mariama’s Story<\/a><\/h3>
7bnh A Brave Mother Facing the Challenges of Sickle Cell DiseaseMariama, a mother of…<\/div>
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February 2, 2024<\/span><\/div><\/div>

Seydou’s Story<\/a><\/h3>
A Journey of Excellence Against All OddsSeydou, diagnosed with sickle cell disease at the…<\/div>
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Meet Our Team<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Ndeye Maguette PiPKINSs<\/div><\/h2>
Presidente co-fondatrice <\/span><\/div>
Ndeye Maguette Pipkins is the president and founder of Empower sickle cell community and she's born with sickle cell Disease.<\/div> <\/div>\n <\/div>\n <\/div>\n <\/div>\n
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Dieynaba NDIAYE<\/div><\/h2>
Vice-presidente et co-fondatrice<\/span><\/div>
Dieynaba Ndiaye is the vice president and Founder of Empower sickle cell community, she's born with sickle cell Disease.<\/div> <\/div>\n <\/div>\n <\/div>\n <\/div>\n
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El hadj DIAGNE<\/div><\/h2>
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Mouhamed Lo<\/div><\/h2>
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Living Daily with Sickle Cell Disease.<\/p>

1. Stay hydrated: Drink at least 2 to 3 liters of water per day to keep your red blood cells healthy and prevent seizures.
2. Manage stress: Stress can trigger seizures. Practice relaxing activities such as meditation, reading, or breathing exercises.
3. Avoid extreme temperatures: Protect yourself from the cold and avoid excessive heat, which can worsen your symptoms.
4. Keep your medical appointments: Follow your treatments regularly and see your specialist to monitor your health.
5. Eat a balanced diet: Eat foods rich in folic acid, iron, and vitamins to support your energy and immunity.
6. Be active, but not excessively: Moderate physical activity can be beneficial, but always listen to your body and rest if necessary.<\/p><\/div>

Supporting a Sickle Cell Disease Patient.<\/p>

1. Educate yourself about the disease: Learn the basics to understand the challenges your loved one is facing. The more you know, the better you can help.
2. Be a good listener: Emotional support is essential. Offer a non-judgmental ear.
3. Adapt the environment: Ensure a comfortable living environment, with a stable temperature and easy access to clean water.
4. Encourage autonomy: Help the person with sickle cell disease manage their disease while promoting their independence.
5. Support during crises: Always have an emergency kit (medications, medical contacts) on hand and be prepared to act quickly in case of acute pain.
6. Participate in awareness: Break myths in your community by sharing reliable information about sickle cell disease.<\/p><\/div> <\/div>\n <\/div>\n \t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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Join Empower Sickle Cell Community to support children living with sickle cell disease and help them lead healthier, happier lives<\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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\n\t\t\t\t\t \n \n\t\t\t\t\t\tDONATE NOW<\/span>\n\t\t<\/span>\n <\/a>\n \t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t\t \n \n\t\t\t\t\t\tBECOME A VOLUNTEER<\/span>\n\t\t<\/span>\n <\/a>\n \t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

EMPOWERSICKLE CELL COMMUNITY Breaking Myths, Building Hope Donate Now Empower sickle Cell Community Welcome to the official website of Empower Sickle Cell Community. Our mission is to raise awareness, support and give hope to all people affected by sickle cell disease. Our Story : The idea of creating Empower Sickle Cell…<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"give_campaign_id":0,"footnotes":""},"class_list":["post-2610","page","type-page","status-publish","hentry"],"campaignId":"","_links":{"self":[{"href":"https:\/\/empowersicklecellcommunity.org\/index.php?rest_route=\/wp\/v2\/pages\/2610","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/empowersicklecellcommunity.org\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/empowersicklecellcommunity.org\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/empowersicklecellcommunity.org\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/empowersicklecellcommunity.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=2610"}],"version-history":[{"count":215,"href":"https:\/\/empowersicklecellcommunity.org\/index.php?rest_route=\/wp\/v2\/pages\/2610\/revisions"}],"predecessor-version":[{"id":4487,"href":"https:\/\/empowersicklecellcommunity.org\/index.php?rest_route=\/wp\/v2\/pages\/2610\/revisions\/4487"}],"wp:attachment":[{"href":"https:\/\/empowersicklecellcommunity.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=2610"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}