Empower sickle Cell Community
Welcome to the official website of Empower Sickle Cell Community. Our mission is to raise awareness, support and give hope to all people affected by sickle cell disease.
Our Story : The idea of creating Empower Sickle Cell Community came from Maguette Ndiaye and Dieyna, two sisters living with sickle cell disease (SS type). Growing up in Africa, they faced enormous challenges, such as limited medical resources and misconceptions surrounding the disease. These experiences had a profound impact on them.
Today, living in Europe and the United States, they are using their personal journey to support children and families facing similar struggles. Their vision is to build a supportive community based on sharing and mutual aid, transforming challenges into hope.
Our Mission
At Empower Sickle Cell Community, our mission is to transform the challenges of sickle cell disease into opportunities for resilience and hope. We are working to:
Raise awareness
Educate the general public to break the myths and stereotypes surrounding sickle cell disease.
Provide support
Assist patients and their families with practical resources, advice, and emotional support.
Unite
Build a supportive community that shares experiences and promotes a better understanding of the disease.
Advocate
Champion equitable access to medical care and appropriate treatments, especially in the most affected regions.
Our Values
Hope
Inspire hope for a better quality of life for people living with sickle cell disease through medical advancements, community support, and increased awareness.
Inclusion
Promote an environment where individuals living with sickle cell disease feel valued, respected, and fully integrated into society, free from stigma and discrimination.
Solidarity
Embracing innovation allows us to find creative and effective solutions to evolving issues. We continually explore new approaches to maximize the reach and effectiveness of our programs.
Upcoming Events
Awareness Day, Blood Donation, and Screening in Dakar
Empower Sickle Cell
At Empower Sickle Cell Community, we believe in the power of dialogue to inform, support, and inspire. That’s why we regularly host live sessions on TikTok.
Sharing our experiences: As individuals living with sickle cell disease, we talk about our daily lives, the challenges we face, and the solutions that help us move forward.
Giving a voice to parents: Parents play a key role in managing the disease. We provide them with a space to share their stories, ask questions, and find support. Collaborating with healthcare professionals: During our live sessions, doctors, nurses, and other experts join to offer practical advice and address the concerns of our community.
Successful Stories
Mariama’s Story
Seydou’s Story
Meet Our Team
Ndeye Maguette PiPKINSs
Ndeye Maguette Pipkins is the president and founder of Empower sickle cell community and she's born with sickle cell Disease.
Dieynaba NDIAYE
Dieynaba Ndiaye is the vice president and Founder of Empower sickle cell community, she's born with sickle cell Disease.
El hadj DIAGNE
Mouhamed Lo
Practical Tips
Living Daily with Sickle Cell Disease.
1. Stay hydrated: Drink at least 2 to 3 liters of water per day to keep your red blood cells healthy and prevent seizures.
2. Manage stress: Stress can trigger seizures. Practice relaxing activities such as meditation, reading, or breathing exercises.
3. Avoid extreme temperatures: Protect yourself from the cold and avoid excessive heat, which can worsen your symptoms.
4. Keep your medical appointments: Follow your treatments regularly and see your specialist to monitor your health.
5. Eat a balanced diet: Eat foods rich in folic acid, iron, and vitamins to support your energy and immunity.
6. Be active, but not excessively: Moderate physical activity can be beneficial, but always listen to your body and rest if necessary.
Supporting a Sickle Cell Disease Patient.
1. Educate yourself about the disease: Learn the basics to understand the challenges your loved one is facing. The more you know, the better you can help.
2. Be a good listener: Emotional support is essential. Offer a non-judgmental ear.
3. Adapt the environment: Ensure a comfortable living environment, with a stable temperature and easy access to clean water.
4. Encourage autonomy: Help the person with sickle cell disease manage their disease while promoting their independence.
5. Support during crises: Always have an emergency kit (medications, medical contacts) on hand and be prepared to act quickly in case of acute pain.
6. Participate in awareness: Break myths in your community by sharing reliable information about sickle cell disease.
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